Some rules are so important they are called, "laws" These aren't the kind of rules I'm talking about. These rules are governed by doctors, written in black and white and live in the pages of medical books. These rules tell a story about our children that are both inaccurate and very negative.
These rules need to be broken.
The rules of Spina Bifida say that our children aren't likely to do many things. Like stand...
Some rules are even so harsh they say our kids won't walk..
And surely running is out of the picture..
The rules of Spina Bifida say, "Your child will have some learning delays."
That probably means singing or speaking two languages is out of the question too, right?
Some rules say that scars aren't beautiful...
Somewhere, in some book it says people with disabilities can't make it to be our president, because it's a sign of weakness. I say, it's a sign of strength.
The rules might have you believe that if our our kids can't run, neither will we.
The rules may say that some kids with Spina Bifida may never ride a bike...
Spina Bifida comes with some "accessories." Some rules might suggest that making them look cool is a challenge..
The rules might imply that walking very FAR distances is just not going to happen..
Spina Bifida is not an easy diagnosis. Some books and some rules tell us to be careful, because this condition can easily tear families apart.
These phenomenal kids and their amazing parents have gone to some great lengths to break some heavy rules.
I consider them all my heroes.